Friday, 9 November 2018


During this whole process the words chronic condition has been thrown about but my issue is you have what the NHS describes as a chronic but then we have our government bodies they really don't look at most chronic conditions as an issue they don't really care about these unseen chronic conditions as to having any problems for the sufferer. The last 3 years I've had a constant fight with the different departments of the DWP I've got the job centre unwilling to help me find a new career because I've got a condition to manage throughout the day but then we've got PIP or their assessors Atos and Co declaring I'm fit for work which is now in the hands of the appeal judge and that process has been a slow process how many people a day does these judges have to see how many cases are on there desks as it is been a year and 7 months how does our government expect anyone to find a life when they are happy to leave people struggle I can see why so many have turned to death to get away from the inhuman activities of the UK government


  1. Thanks for starting this blog. I was diagnosed last year and only after seeing 5 separate specialist from 5 different disciplines. It wasn't until a bite on my leg I got in 2012 which never healed and ultimately became an ulcer that finally I saw the specialist in the ulcer clinic (I was the youngest there by about 50 years!!!). The stockings have transformed my life although this hot summer was difficult. Due to not being diagnosed sooner I have dark marks on my leg that even show through tights, I have decided to embrace it, I have natural tattoos - that's the way I decided to look at it and stopped hiding my legs this year. I said to the GP - I am not confining myself to trousers for the rest of my life so you'll have to prescribe me a range of stockings that work with different outfits and nother care about the cost. Unbelievably because I dont have this condition because of cancer and despite it being lifelong I am not eligible for free prescriptions. Keep up the blog, I'll follow you. Have a great day. Naomi

    1. Oh Naomi I love your answer'natural tatoos' mine are at the top on the inside. For years I hid them as best I could. As I didnt want to answer questions. Sod that now.

  2. Hi. Following your blog from Wales. Also have primary lymphoedema. Do you know what caused yours?

  3. Thanks for the honest blog - I have suffered with Lymphoedema in my left leg since my teens (following the first of 2 serious cellulitis incidents) I am now 46. Initially the doctors didn't know what was wrong but after about 18 months I got my diagnosis and was told there was nothing that could be done. I had been off work since then so I applied for the then disability living allowance and got rejected 3 times but they did finally accept me on the fourth and was told that I would be eligible for life. Last year this changed to PiP and I had to be assessed again and like you I was told I was not eligible. I was tired of fighting for it and decided not to peruse it further. I do have a job (in IT) so unlike you I get the chance to sit down for most of the day and wear compression supports does help but I am still in discomfort and find it hard to find trousers to fit etc. The one thing I will not let my 'condition' stop me from doing is riding my motorbike - Dangerous I know even without Lymphoedema but I had some specially made boots that protect the leg (as much as you can). I did have help from a Lymphoedema clinic at a local hospice and has had a couple of go's at compression bandaging and this has really helped and also access to custom compression stockings and these do really help so ask your doctor for a referral.

    To most people Lymphoedema seems to be a 'minor' condition, "so you have a fat leg! - so what" but the constant pain and uncomfortable feeling can wear you down and I have suffered anxiety etc from it, it has definitely changed me.

    Don't give up Craig, sure the government are making it really hard at the moment due to the current financial climate but persevere and it will all work out!

    Russell Hale