Monday, 5 November 2018
My Journey was a long road of discovery as to why my ankles would be a lot bigger at the end of the day as it was at the start of it. At different points of my life, I would seek help from the different doctors in the different areas of the country I had worked in trying to find the answers as to why this was happening id get frustrated with the same routine id have to go through trying the same prescription drugs for water retention because they all had to follow the same routine as the rest of them, not believing me that I was in constant discomfort with it even though my career had me on my feet for 12+ hours a day I had a reason to keep going I fought through the discomfort for many years learning how to manage a condition I didn't even know I had. Working out that my feet would have to be elevated but that wasn't easy considering my occupation revolved around standing on my feet all day long I struggled through my 20's with the pain and discomfort. I had a terrifying experience in my mid 20's while on holiday in Rome when my left ankle had swollen more than it had ever done before hobbling around the city centre looking for a hospital to try and get help for my ankle which was burning hot had changed colour to blue and red not speaking a word of the language not knowing what was going on having four nurses surrounding me trying to break the language barrier to try and help and understand what was happening being given a prescription for something to take that would eventually help, then around the time we were expecting my daughter I gave it one last try to find out what the issues were that was when I eventually found out that I had Primary Lymphoedema but that was when the journey would begin to get harder I knew I had a chronic condition but it was a condition that not very many people would know about.