Friday, 2 November 2018

What is Lymphoedema


As a sufferer of this condition that had developed in my teens, it wasn't diagnosed until I was in my 30's everything I have learnt about this condition has been through searching the internet and reading the many blogs and papers written on this subject but yet I feel like I still nothing about the condition itself below is a section taken from NORD a small description of the condition 

This is a chronic condition listed on the National Organisation for Rare Disorders, this condition is a genetic developmental disorder that affects the lymphatic system this system is a circulatory network of vessels, ducts and nodes that filter and distribute protein-rich fluid throughout our bodies, In hereditary lymphedema, lymphatic fluid collects in the subcutaneous tissues under the epidermis due to obstruction, malformation, or underdevelopment (hypoplasia) of various lymphatic vessels. This is the same confusing information that can be found on most sites but from a sufferer of this condition it doesn't exactly help you to understand it doesn't help you prepare yourself for what the future holds living with a chronic condition that has very little understanding trying to work out what all the medical terms are for a condition that the medical professionals seem to know very little about, 

I've started this blog to not only help spread awareness of the condition but to help me understand from learning from other people who are unfortunate to suffer from this condition 

2 comments:

  1. Well done I'm looking forward to reading this as I know nothing about this illness.

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  2. I too suffer from this condition. I have been diagnosed with chronic lymphoedema for the 12 years. I am looking forward to your blog.

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