Sunday, 2 December 2018

What`s Next for this condition in me

over the course of the last month, I've been looking at diagrams of the lymphatic system watching youtube videos and reading a couple of books based on the condition. Even though the research I've done has not actually explained what's going on in my lymphatic system the diagrams I've seen has explained a lot.

The books have explained that this condition will need constant management, which I've not had anyone involved in mine for at least 4 years. Luckily for me, I understand the dangers of infection but I didn't really understand why until I started looking at it. for a system in our bodies which in my understanding is the first line of defence against infection, why medical professionals don't get more training to understand this system is a mystery to me. The thing I was never informed when I did get management for it was how the body was able to push the excess fluid around the lymphatic system it uses muscle movement to do this so a moderate amount of exercise would be needed, but how much exercise is enough to keep the swelling down and what garments are most suitable to do this is probably why constant management of this condition is needed to answer these question. looking at the Diagrams and where the main clusters of nodes are situated they are roughly in the same areas as my discomfort is but does this explain the other sensations in my arms and back can the tingling be because of the muscles trying to push this lymphatic fluid around my body or how close are they to our nerves the more I think the more questions I come up with   but over the course of the last 48 hours I've had this annoying discomfort in my groin area and I'm not ashamed to come out and say it the testicle area also this has the same feelings as I got in my legs all those years ago so along with the nodes in my neck and groin these sensations are moving I've a feeling this condition can move to other areas of the body but with no proper research how can they disprove me or how can i prove them wrong. There is going to be a struggle to get the doctors to take this seriously as they will more than likely try saying that it will be something else but after 3 years of doing what I've been asked to do, the tests I've had to endure the travel I've taken and the anxiety that its caused when does the time come for me to be firm and get them to take the Lymphoedema seriously remind them that in all there training they are only educated less than an hour on this important system of our bodies

1 comment:

  1. So interesting to read,it is becoming more and more apparent that they know nothing. Keep doing what you're doing.